Duchenne muscular dystrophy is a progressive muscle wasting disease. It causes muscles to weaken over time because the body cannot produce dystrophin, a protein muscles need to stay strong. Duchenne affects every muscle in the body, including the heart and lungs. Despite the challenges, we choose faith, resilience, and joy. He has already surpassed what doctors once said was possible. Sharing our journey to spread Duchenne awareness and hope. If you’d like to support Duchenne awareness, drop a g
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Duchenne muscular dystrophy is a progressive muscle wasting disea…
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One of the most powerful tools for people living with Duchenne muscular dystrophy is something many people have never heard of: switch access. As muscle weakness progresses, pressing small buttons, pulling triggers, or gripping objects becomes harder. But that doesn’t mean the activity has to stop - it just means we adapt how it’s done. Take a Nerf gun, for example. By modifying it to work with a large external switch button, the trigger no longer needs hand strength. A light press of a switch,
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One of the most powerful tools for people living with Duchenne musc…
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12 reactions | It’s a heavy silence. #duchennemusculardystrophy #muscleloss #duchenne #dmd #duchenneawareness #thesilence #thewait #parentcarer #duchenneparent #wheelchair #disability #lifelimitingdiagnosis | Harrison & Duchenne - Raising Awareness of Duchenne Muscular Dystrophy | Facebook
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