Columnist Jennifer Lynne shares the story of a mother in the Dominican Republic whose two daughters have factor VII deficiency.

As a care partner, columnist Allyx Formalejo shares something that feels harder to talk about than ghosts or monsters: her ...

Columnist Jennifer Lynne believed she was the first in her family with hemophilia, until she learned she was just the first with a diagnosis.

Columnist Joe MacDonald is proud to see his adult sons self-advocate using lessons they learned from their parents growing up.

Columnist G Shellye Horowitz reminds herself to learn to pause and remember when her hemophilia treatment journey did not ...

Inno8, an antibody fragment for oral administration, may be a preventive treatment for hemophilia A, according to preclinical ...

Our 7-year-old daughter, Cittie, recently found herself at the top of a climbing wall at a neighborhood playground. She had managed the climb just fine, but when it came time to descend on the other ...

In the spring of 2025, I set out to create a piece of art depicting both the challenges and the beauty of navigating treatment for hemophilia A. However, soon after I started the piece, my health ...

Artificial intelligence (AI) shows promise for helping doctors diagnose hemophilia, detect joint complications, and predict disease severity and other clinical outcomes, a review of published studies ...

A symphony is a long musical piece with a clear structure, traditionally divided into four sections called movements. Each has its own tempo, mood, and rhythm. The pauses between them give the ...

Three years. That’s how long I put off a colonoscopy I’d been told not to put off. This wasn’t a first screening I could shrug off. At my previous colonoscopy, doctors found and removed a precancerous ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google When my oldest son, Julian, was 6, he started a ritual whenever I ...