Columnist Joe MacDonald worries about his son's treatment compliance, but watching Caeleb thrive makes him feel like a proud dad.

I knew back flips and aerial twirls weren’t in my reach, so I set my sights on mastering the cartwheel. But it was never to happen. Trusting my outstretched hand to send my body and feet over to the ...

After a procedure for SMAS, columnist G Shellye Horowitz is dealing with hair loss and restless leg, results of low iron and ...

Regular exercise may help ease chronic pain in people with hemophilia of all ages when tailored to individual needs, a review ...

To columnist Jennifer Lynne, plasma donors aren't just giving a component of their blood; they're giving bleeding disorder patients a future.

A song sent to him by his son reminds columnist Joe MacDonald how art can inspire those with health challenges to find hope in their talents.

In a society where reality television is king, passing judgment is easier than ever. Contestants in competitions such as “Dancing with the Stars” and “American Idol” are eager to hear the judges’ ...

World Hemophilia Day, April 17, will highlight the importance of early and accurate diagnosis as a way of helping patients ...

Better mental health is associated with better adherence to prophylactic treatment in hemophilia. Adherence is higher in hemophilia A and among those receiving more frequent infusions and shorter ...

Julian Macdonald shares advice on training oneself in self-advocacy with hemophilia. We listened to the conversations happening across the hemophilia community to uncover the questions and challenges ...

A small survey study in Germany found that many people with severe hemophilia are not interested in receiving gene therapy, despite having “only general knowledge” of the treatment option — which, the ...

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