One of the biggest pieces of advice that we received was from an uncle who also has hemophilia. That advice is to let Zyko do everything he can. Do not treat him as fragile and vulnerable to ...

Columnist Jennifer Lynne shares the story of a mother in the Dominican Republic whose two daughters have factor VII deficiency.

As a care partner, columnist Allyx Formalejo shares something that feels harder to talk about than ghosts or monsters: her ...

Columnist G Shellye Horowitz reminds herself to learn to pause and remember when her hemophilia treatment journey did not ...

Columnist Jennifer Lynne believed she was the first in her family with hemophilia, until she learned she was just the first with a diagnosis.

Inno8, an antibody fragment for oral administration, may be a preventive treatment for hemophilia A, according to preclinical ...

Columnist Joe MacDonald is proud to see his adult sons self-advocate using lessons they learned from their parents growing up.

In the spring of 2025, I set out to create a piece of art depicting both the challenges and the beauty of navigating treatment for hemophilia A. However, soon after I started the piece, my health ...

Artificial intelligence (AI) shows promise for helping doctors diagnose hemophilia, detect joint complications, and predict disease severity and other clinical outcomes, a review of published studies ...

Our 7-year-old daughter, Cittie, recently found herself at the top of a climbing wall at a neighborhood playground. She had managed the climb just fine, but when it came time to descend on the other ...

Bleeding that persists or restarts after dental procedures may be an important warning sign of previously undiagnosed mild hemophilia, a systematic review of published case reports suggests. Across ...

The letters start arriving in October. There are plan summaries, notices of benefit changes, and a glossy booklet with a smiling family on the cover. I’m fairly sure that family has never called a ...