The Committee for Medicinal Products for Human Use (CHMP) has recommended that approval of Agamree (vamorolone) in the ...

The Speak Foundation launched the LGMD Centers of Excellence, a network of clinics dedicated to improving care for people ...

Wheelchairs tend to be equated with disability, but columnist Patrick Moeschen sees them as tools that increase function and ...

Upsher-Smith launched Kymbee support websites offering guidance on treatment, access, and care for DMD patients, caregivers, ...

A new collaboration aims to improve the design of clinical trials testing potential treatments for facioscapulohumeral muscular dystrophy (FSHD). The FSHD Society, a patient-driven advocacy ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google I have always been an open book about my life. I am a writer, ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google The U.S. Food and Drug Administration (FDA) has given Mesoblast ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last Saturday, I attended “Les Misérables: The Arena Spectacular” ...

The Muscular Dystrophy Association (MDA) and Burn Boot Camp, partnering once again for the 10 th annual Be Their Muscle campaign, are calling on everyone across the U.S. to join a workout and help ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google As I grow older with limb-girdle muscular dystrophy, one of my ...

Getting Duchenne muscular dystrophy (DMD) treatments covered shouldn’t feel like a second job, but it often does. Between insurance denials, endless paperwork, and high medication costs, treatment ...