Columnist Jennifer Lynne shares the story of a mother in the Dominican Republic whose two daughters have factor VII deficiency.

As a care partner, columnist Allyx Formalejo shares something that feels harder to talk about than ghosts or monsters: her ...

Columnist Jennifer Lynne believed she was the first in her family with hemophilia, until she learned she was just the first with a diagnosis.

Columnist Joe MacDonald is proud to see his adult sons self-advocate using lessons they learned from their parents growing up.

Columnist G Shellye Horowitz reminds herself to learn to pause and remember when her hemophilia treatment journey did not ...

Inno8, an antibody fragment for oral administration, may be a preventive treatment for hemophilia A, according to preclinical ...

Some medical offices won’t schedule me for a procedure without clearance from my hematologist. Others never even ask. I’m the same patient with the same blood, yet I get completely different answers ...

More people are being identified with hemophilia B across the eastern Mediterranean region, suggesting improvements in hemophilia diagnosis and reporting, according to a study analyzing 10 years of ...

For years, I saw wheelchairs and other mobility devices as symbols of limitation — signs of everything a person could no longer do. Then my youngest son, Caeleb, needed a wheelchair due to ...

Our 7-year-old daughter, Cittie, recently found herself at the top of a climbing wall at a neighborhood playground. She had managed the climb just fine, but when it came time to descend on the other ...

In the spring of 2025, I set out to create a piece of art depicting both the challenges and the beauty of navigating treatment for hemophilia A. However, soon after I started the piece, my health ...

Different blood tests can give different factor VIII activity readings after Altuvoct treatment, complicating monitoring. Discrepancies were greater when factor VIII activity was lower and more time ...