Thomas Pearce has Pfeiffer Syndrome, which causes the skull to prematurely fuse in the womb.
Add Yahoo as a preferred source to see more of our stories on Google. William Thompson is surrounded by family and friends during an interview with media at the Stephen R. Chapman Family Community ...
00:00 - Introduction 01:24 - Nova & Living With A Cranial Facial Difference 08:41 - Victor & CLOVES Syndrome 13:21 - Holden & ...
18 years after caring for baby with rare disease, nurse takes his graduation photos Braden West was never supposed to live past 18 months, let alone 18 years. Braden was diagnosed with Pfeiffer ...